Eddie Vedder Brings Awareness to EB, A Rare & Debilitating Skin Disease
Tue, 14 Oct 2014 12:09:13
Pearl Jam frontman Eddie Vedder is bringing awareness to and offering his support of the EB Research Partnership, an organization that hopes to find a cure for a rare skin disease called Epidermolysis Bullosa, or EB. Sufferers have incredibly fragile skin that can flake away at mere touch. So sad and so painful.
"When I first heard about it, it was quite hard to grasp the intensity of the condition," Vedder said in a video supporting the campaign. "It's about the most insane skin disorder you could imagine. And when you realize it also affects the internal organs, you see it as diabolical. It's very hard to describe until you meet the young folks with it, and they make you realize how much you take for granted. You also realize that these are some of the strongest, coolest, most admirable people on the face of the Earth."
Those who suffer from EB deal with pain and infections, and they are left treating severe wounds with intensive bandaging. There is no cure, but researchers at the University of Minnesota are looking at genetic techniques that could reverse the DNA mutation prior to birth.
Go EBResearch.org to further educate yourself about the condition, the initiatives and how you can help.
Watch the Vedder video below.
Can you help? Even if you spread the word by sharing and posting the video, that's critical as it spreads the word! No one should have to suffer from this condition. It breaks our hearts.